Tobi Nebs.

I know i don't do my Tobi Nebs alot....ok never but i have got a plan!
I'm going to start taking it once a day and see how i go, if i keep that up i will up it to 2 times a day. I don't do my DNAEs unless i know i have time and will do my physio, if i do them and then don't do my physio then its bad as it can make stuff worse in my lungs and i don't want that.

I have a cough again but to tell you the truth i always do so that's nothing new! i do also feel breathless when i walk, even if its just around tesco, so the nebs will help.

I have been doing lots of e-baying this last month and with my mum and dad giving us stuff to sell i think we have made 400-500 pound! all has gone on bills tho so didn't see any of it, well i did see 46.99 of it as i got a new watch :) its a DKNY one and i had the same one 2 years ago for x-mas but i cant find it anywhere! anyway i treated my self to it.
I also got a new Radley purse for mothers day at the weekend too, really happy with that, i love it. thank you Connor xx (and Matt lol)

My friend Charlotte is in hospital at the mo so i went up to see her last night and took her in a goody bag full of bits! she loved it so that was the main thing, and i also got her a card...now this may sound like something she would get anyway but your wrong! as many CF people will tell you because we are in and out of hospital all the time people forget we are ill and just see it as every day life and nothing diff, she was very happy with the card too :)

xxx

Council, Shopping and Nasty Buttons!

The last few days has been all about the council.
I filled out a form about council tax as i have a med's room where my physio bed and bike are and all my feeds stuff and stock or all my i.v's and my normal pills for every day.
Well the lady i talked to when i asked for the form told me that even tho we have this room for all my stuff and don't sleep in it or anything she said i wouldn't get the discount as i have not changed it just put stuff in it.
Anyway a man rang me from the council yesterday and asked what CF was and what i use the room for so once i had told him all about it he said it sounds like i will get the discount but he would need to make a 5 min vist to make sure I'm telling the truth but said he didn't see a reason why not, silly woman didn't know what she was talking about! so he is due at 3pm to moz.

I had a lady ring me on Monday i think it was anyway it turns out we can have our loft insulated for free because I'm on DLA so I'm happy about that all i have to do is get the council to agree to it and it will be done.
I rang the council and they said i have to send them a letter saying what i want to do and they will send one back telling me if we can do it or not so while i was doing that i also asked if we could knock down the old brick coal shed by our back door as i cant see Connor in the garden unless I'm out there with him, so its for safety really + i really hate it, its about a foot from our back door and its full of bugs and not very nice stuff lol so I'm going to drop that in to moz after i have taken Connor to tumble tot's.

I went shopping to lakeside with my friend Laura yesterday, it was a really nice day out! i got Matt his birthday stuff, wont tell you what as me may read this! I also got a few things to make a cake with too :D if i don't mess it up that is lol if i do i will just buy a white iced cake and put everything on that, i will also take photo's.

Think i have got my button sorted out now, it was bleeding last night as when i woke up i had crusty dry bloody round it, it kills. i have started my cipro yesterday so hope they work even tho my CF nurse said they couldn't say if they would or not! grrr.
I'm going to deff have it out still as i hate it and don't use it so i want it out!
I have to pick up some dressing for it to moz and see if that will also help it, she said that i should not be worried if it turns my belly black....right lol

Bits And Bobs....

Why do i never seem to have any time to do this and update everyone on what has been going on in our little life's.

As i type i have Connor sat on my lap twisting his neck to see the TV but wont get off me to make it easier for him, every time i try to move him he gets the hump and jumps right back on...and if he's not sat with me he is an inch away from the TV and many a time i have come back in the room from washing up or what not and he is there an inch away and able to lick it if he wished! that or he is on the house phone, i just thank god he hasn't dialed the police yet but I'm sure he will and one day when I'm cleaning or something we will have 3 cop cars turn up and kick the door in coz they think someone has been killed!!

Talking about that someone has been killed by my mums house, since Saturday morning there whole street next to my mums has been taped off and there is police there 24/7, word in the street is that a old woman in her 60's was robbed when she got home so she phoned the police but while she was waiting for them (and we all know how long they take to come out) the robbers came back to take more stuff and found her there and something went wrong and they killed her and legged it!!!! it makes me sick to think why anyone would kill anyone let alone an old woman 60+ years old, its just not right on a number of levels. i hope they get found and go down for life, and also life should mean life! not 18 years.

This last month we have had just about ever bill you can think of come through our door, Matt only got paid on Friday and with paying everything he only has 17 pound left! we got to live on mine now for the month, it isn't that bad but we cant spend any more money on anything but food and to fill the car up. its also Matt's birthday on 10th but I'm going to have to see what i can do about that. he wants a new football shirt but its about 45 pound and i really don't think i can get that this month so it might have to wait till next month and i just get him some sweets or something just so he has something to open up on his birthday.

I have been selling on eBay and so far we have around 80 pound once they take there fee's so that's good, i also have alot more on at the mo and if they sell i should have around 200 pound more so I'm really hoping they sell.

Everyone seems to be going away at the mo :( me and Matt have been together 3 years 4 months and we have never had a holiday away yet, Matt went to the USA a months or 2 after we got together....and me, well the last holiday i went on was when i was 15!!!!! I'm now 24, 25 this year so you can see its been a very long time! and i cant wait for next year, we are going away for Connor's 3rd birthday to a center parc's!!! i really cant wait, it will take a lot of saving but it will be worth it.

Connor has fallen asleep on the sofa now so i cut his nails while i had the chance, i can only do them when he is asleep as he wont sit still for anything lol

anyway while he is asleep I'm going to get on with some washing up.

New Phone And A Free Wii.

Today i ordered my new phone (A Samsung Soul) from Dial-A-Phone and got a free Wii and game with it! I'm well happy! it comes to moz (21st Feb) by 1pm YAY!!!!

I have been trying to get my photos off my old phone on to the laptop so i can save them but to tell you the truth i don't have a clue what I'm doing lol so will have to wait until Matt gets home from work. i also wanted to put the new photos of Connor from my cam to the laptop but i cant find my cable for it so I'm not having much luck with photos and laptops today.

Connor went to a play center on Monday and loved it, we went with my mate Laura and her son Louis who is 5 months older then Connor and when we got there we was the only ones! mind it wasn't very big but was enough for them to play in, anyway we got a cup of tea and sat down on the 1st table so we could easily see the boys playing. after about 10 Min's a bunch of kids came in with there mums (all around 35 +) and kind of took over! as Connor and Louis was the youngest ones there they were pushed about a far bit, Connor didn't like and and stayed close to us but we couldn't get Louis out of there lol he loves it, running about with all the other kids (age range from 2-6)
Like i said it was nice but because i don't look older then 16 and Laura looks like she is off the cat walk (6 foot tall, blonde, very pretty and about a size 8) every time she got up to see to Louis the other mums kept looking at her funny and talking about her....wishing they looked as good as her I'm sure!

Had to go to papworth on Wednesday and everything was gr8! my LF was at 45% 6 weeks ago and now its at 44% so not much of a drop and my weight was at 51.8kg and now is at 52.4kg and that is without any overnight feeds!!!!! so I'm very happy about that, my sats were at 95% too.
My peg is still very very red and hurts alot still, not keeping me up at night like it was last week but still not nice, they took another swab of it and will get back to me next week about what it is.
I have been put on to creon 25,000 now from creon 10,000 as the 10,000 had seemed to stop working for the last 2 months and i kept finding myself oh the toilet for what seemed like hours at a time lol (not that you needed or wanted to know the last bit!) so they should work better now and its alot less pills so I'm very happy with that too, all in all a very good day!

My friend Charlotte is away on Holiday this last week (comes home to moz) and i have really missed talking to her lol next week we are talking the kids to another play center and i cant wait :) what a big kid lol

Connor got his Tumble Tot's t-shirt in the post yesterday and he wanted to put it on right away! he will have to wait till next week when they go back (had a week holiday)

Anyway i need to get on with stuff, got to get in the bath and put Connor in after while I'm at it. saves doing it later tonight

Nothing But Life

God I'm so bored with how my life is!
i don't go out much in the week as everyone works or my mates live to far away, i only go out at the weekends with Matt coz he isn't at work but he always wants to stay in as he has been at work all week so he gets the hump.
I just feel on the outside at the mo, my mates don't really seem to care and they all go out the the pub or a club and never think to ask me along....since having Connor i don't do anything!
I'm not saying having Connor was bad or anything, i love him more then anything else in the world and i would never change having him but I'm just getting fed up and lonely being on my own.
i don't go out with Connor on my own as he is so heavy now that getting him in and out the car is hard and with it being cold i end up having a coughing fit once I'm in the car, and he has a big coat on that is really just to big to do anything with.

I'm having such a self pity day today, i was meant to go out with my mate Laura, just me and her but she came with her bf nick. i didn't mind him coming i was just hoping it would be us.

i think I'm going to go to bed as I'm just going to ramble on about more stuff that i don't like!
night all x

New Dinning Room Set!

We got our new dinning room set today!! the rang yesterday to say they would be round from 7am to 12 noon and what time did they turn up???....7.45am! but at least it was then out the way and i had the whole day free to sit on my butt, Matt came home from work at lunch time as he has a cold and didn't feel well but then started to set up the table so i said he couldn't have been that unwell...he said he was.

Connor has been very naughty today, he wont leave my house phone alone! if i leave the room he is on it, one day he will ring the police and they will be at the door thinking something is wrong for a baby to ring them!

We had to take Connor to A&E on Monday night as he wasn't well, he was finding hard to breath and he was coughing alot but it wasn't a normal cough not even a cough as bad as us with CF, it was a bark like a dog. anyway after being up there from about 10.45pm till 2am they sent us home with not doing much. they said he had croup but it must have been mild for them to send him home as my friends two kids had to have steroid's.

He is alot better now tho.

He has started to really throw a right strop when you try to change him and he has started to throw his head back really hard, I'm scared he will hurt himself if he Carry's on like this, i hope it wont last for very long.

He head butted me today, it hurt so much i really thought i would have to go A&E with a broken nose but it was ok after 10Min's, i might have a black eye when i wake up tho! he cried so much so i wasn't really registering my pain just his but once he stopped i could feel mine lol

I have never known a kid to not nap in the day time...Connor has been doing it since before his 1st birthday, he will nap one day for like 20Min's to an hour max and then the next day he wont but by about 4/5pm you can see how tired he is, like today he fell asleep on the sofa when i was getting his dinner ready (we all ate at the same time up the new table and it was lovely) i have taken a photo so will put that up. he woke up in the end and had his dinner then a bottle of milk and when to bed at 6.30pm and hasn't woken up since so that is good.

I got my Ugg boots now, Matt's mum got me them for Xmas but they were the wrong size so we went and tired some on in the shops to see what size i was and we found out that the ones she had got me were fake! anyway she has got me new ones now but they did cost her like 70 pound more then the fake ones.

Anyway here are some photo's...

New Year, T-Mobile And Stolen Car's!

Happy New Year!!!!

Lets hope 2009 is a better year for all CF people!

Well x-mas has gone so fast! it really has, but it also feels like it was such a long time ago, its only 7 months till Connor is 2 years old!!! He has started to say a few more words at the moment but he isn't saying them all the time just every now and again, he can say bye, bob and yeah.
He is really sweet when he Say's them, its so cute.

Connor got so much for x-mas, we didn't take any photo's because i lost my camera (i.e Connor hid it again) and he got so much that i cant even say but his main things were a little tikes red and yellow car, a jumping zebra thing, lots of Thomas stuff, some DVDs, some Cd's, lots of bob the builder stuff....he got lots more then that too, i will take some photo's soon and put them up.

Matt got a blue i-pod nano from me and lots of little bits, he got a big big big beanbag off his mum (takes up half our room!) umm lots of other little thing.
I got money, a new 60L bin, mamma mia CD and DVD, vouchers, jeans, and some ugg boots! but they boots have to go back coz there a size to small for me.

T-Mobile are the worse network ever!! never go with them! i gave them my phone on the 3rd Nov so they could fix it and they still have it! i keep going back to the shop asking whats going on but they just keep telling me to wait and that they cant do anything about it...grrr so i got fed up with that so i got my mate Laura to come to the shop with me to sort it out (Laura has worked in phones for you for the last 4 years) anyway she got it sorted and they gave me 70 pound back for the last 2 months of them having my phone and the lady in the shop says they have lost my phone from the looks of it so she is going to ring me on Monday to let me know what is going on.

And last but not least yesterday at 6am Matt's mum and dad had there car's stolen off there drive! the police say its a gang that know what they are doing and that have done it to lots of people in the last few months. they got in by the back door and took the keys and took Matt's dad's wallet that had over 250 pound in and all his cards, they took the BMW 1st that Matt's dad only got in the summer and cost them about 40 grand and then they took the 08 land rover that's cost about 24 grand!!!
the police cant do anything about it!
so all in all not a gr8 x-mas.

hope everyone else had a nice time