Tuesday, 21 April 2009

My E-Flow Is No More...

My E-Flow has passed its sell by date as they say, it just died, stopped working! I cant get it to turn back on or anything and i have tryed everything i can think of.
Anyway i rang my team and have been told to bring it up A.S.A.P but i cant get up for 2 days so that is just going to have to do. I'm so mad coz i have been so good with doing my neb's and at the moment I'm on my month of colomycin so that's going to be a messed up month, i just hope that i can get back in to it once i get it fixed or get a new one.

I'm loving the sun we have been having and its great that all my washing can go out there so i don't have to use my tumble dryer altho i do have to iron it now but that don't take long.
I'm still waiting to hear back from the council to see when we can pull the old coal shed down that like a meter from my back door! not pretty at all.

Connor has 4 ex battery hen's now, there at my mums house coz i don't think our cat would like them...or maybe she would like them to much! I have some photos of them too but there not on my laptop yet so you will have to wait for these ones.

Tuesday, 7 April 2009

Goodbye Suzy XXX

I have some very sad news, my good friend Suzy passed away last night in her sleep.
I'm very upset and don't know what to say, Suzy was such a nice and lovely lady and I'm so angry with CF and that she didn't get the TX she needed.

I have felt so lost today and didn't know what to do with myself really, it came as such a shock as no one really knew how ill she was, Suzy never liked to talk about CF, she didn't want to be reminded of it i think, whenever i asked her if she was ok see always said she was.

I will miss her so much, so so much....staying in papworth will never be the same, i wont have Suzy there to chat to about the care and food we get.

Cant say anymore I'm sorry x