Wednesday, 25 June 2008

Tuesday, 24 June 2008

London and Transplants

Well we got back from London on sunday night after a lovely weekend away just me and Matt. We had such a nice time even if i did get very tired!
A white limo picked us up at 9am on the saturday from my mum's house and took us to London, (we had a bottle of bubbly too) we got to London around 10am and checked our bags in because we could not check in to our room untill 2pm. We then sat in the lobby and had a cup of tea while we waited for our car to take us to the Natural History Museum at 11.30am, We had a good time looking around all the bones and reading about the world in the Museum. We had some food in the cafe and had a good look around the shop too, got some nice bits for people back home.
We then got a London black cab to Harrods and looked around there for an hour or so but didnt buy anything because it was all so much money! They had puppies and kittens there too that were so cute but at £1000 per kitten we wasnt getting one :)
After Harrods we went back to the hotel for a few hours to have a bath and get ready for going out for a meal in the everning.
We got to the restaurant at 7.15pm and sat outside to eat as it was a lovely warm everning and we was right next to the theams and tower bridge so that was nice to look at, the meal was very nice but didnt fill us up so when we got back to the hotel we order room service lol.
The next day we went to Madam tussauds at 10am and had a nice time looking at all the wax people, there was so many people in there that we kinda ran round and left about 11.15am so we then went for a drink in Weatherspoons in Baker street then we went to the London Eye site and went in the London Aquarium and i think that was the best bit for me, it was really good seeing all the fish and there was 4 very big sharkes too.
After spending a bit in the gift shop we had some hot dogs and an ice cream before having a look around the London Eye gift shop and then we went on a boat trip down the Theams and got some really good photo's along the way, we then walked back to the hotel where our limo was waiting to take us back home again.
All in all we had such a good time and loved it! Thanks to the Willow Foundation who made it all happen.

I missed Connor so much when we was away for the weekend and was so happy to see him again, i think he missed us to, he gave me a big hug and a kiss! i think he had a good time with Nanny and Grandad Oates.

My I.V's ended on friday but my lung func was down so they are not too happy at the hospital and i have to go back in 2 weeks to see what there doing. The CF Nurse Sam was talking to me about a Transplant, she said the Dr's put people on the list at about 30% lung func and mine is at 32% after 2 weeks of I.V's so i will have to go on that soon but they will talk to me about it more when i go back in 2 weeks.
Im a bit scared but if i can have it then i will have it as i want to be around for Connor as long as i can and if that means having to do this then so be it.

Friday, 13 June 2008

Ed got his call.....

My friend Ed got his call yesterday :) it is such good news! im so happy for him, its the best news i have heard all year.
I dont know much about it at the min but i think everything is ok, the nurse said they cant tell us much and that we will have to wait but from what i can tell everything is good.

On another note im going home now YAY, a week in hospital and a week at home doing I.V's so not to bad and all in time for me and Matt going to London next weekend but i will tell you all about that in the week as im packing my room up now :)

Wednesday, 11 June 2008


Sad news again from the CF site, Sandy passed away yesterday around 9am, her big brother posted saying so and its such sad news i was so shocked when i found out as i have talked to Sandy on the site and on Facebook and she was a gr8 friend, always up for a chat. She was in hospital for around 9 weeks until the end...she just couldn't fight anymore. Everyone is sad, Sandy was such a nice lady.

Any one that can please sign up and become an organ Donor, you could save so many lives...x

Monday, 9 June 2008

Wow well its been some time since i posted on my blog, its been a very busy few weeks.
I have my car now, a black 1.8 Astra and i love it, its so nice to have a new car its just a shame you have to be ill to get it.
We got Connor his new car seat and he loves it now he can see us when were in the car, we just have to try and not wake him up when we take him out. I'll put some photos up of him in it soon.

I'm once again back in hospital at the moment and had a bad night last night and not a good day today but I'm feeling a bit better now. What it was that made me feel so ill was a new I.V drug that was making me be sick so the Dr's gave me some very strong anti sickness drug that was to strong for me and i had a bad turn on that too, it was like the room was spinning and i could not stop it and that lasted about 24 hours i would say for me to get over it.

I don't feel too good now I'm very tired so I'm going to go to bed now