Late Up-date

Well this is a very late up-date, I'm not even sure what i have been doing with my time to tell you the truth!
The sun has been out alot over the last few weeks so that's been nice, been out enjoying it with Connor, we have been to a farm and the park and to my friends house.
I have also been to the pic's to see that film ghost's of girlfriends past...it really wasn't that good tho, I'm not very happy about it but at least it didn't cost me anything as i had my free cinema card! i also had a hot dog while i was there and it was so nice but i forgot to get some sweets or popcorn so was pretty bored with nothing to eat while i was there lol

I have been getting bits and Bob's for Connor's bedroom, so far i have some dinosaur wall stickers that cost me £35 but there really nice and got his name in stickers too from the same website, i have got him some dinosaur bedding from Next and a dinosaur teddy from Next that looked good on the bed in the shop lol that was £42, i got him a dinosaur height chart too lol can you what Im going for here?. my mum got him a side rail for his single bed when we buy it so he wont fall out of it so that's great, i wanna get him a few more bits too like a lamp and re-paint his room.

Were getting his bed from Next and Matt's mum and dad are going to pay for half of his bed and mattress for his 2nd birthday so that's a big help as the bed without a mattress is £225! I'm spending so much money on his room but i want stuff that will last him and the bed should do him till he is at least 10 years old then he will prob get a double bed as he has a big bedroom. I'm also going to order him the bed side cabinet too from Next at the same time.

its unreal that Connor will be 2 in 2 months! it has gone so fast.
he is talking more now so I'm really happy about that, he can now....
* say bye and wave at the same time,
*say bob (over and over!)
*say go
*say mum
*say wow
*say oh no.

prob dont seem that much but to me it is lol in a few months he will be talking and we wont be able to shut him up i bet haha

My E-Flow Is No More...

My E-Flow has passed its sell by date as they say, it just died, stopped working! I cant get it to turn back on or anything and i have tryed everything i can think of.
Anyway i rang my team and have been told to bring it up A.S.A.P but i cant get up for 2 days so that is just going to have to do. I'm so mad coz i have been so good with doing my neb's and at the moment I'm on my month of colomycin so that's going to be a messed up month, i just hope that i can get back in to it once i get it fixed or get a new one.

I'm loving the sun we have been having and its great that all my washing can go out there so i don't have to use my tumble dryer altho i do have to iron it now but that don't take long.
I'm still waiting to hear back from the council to see when we can pull the old coal shed down that like a meter from my back door! not pretty at all.

Connor has 4 ex battery hen's now, there at my mums house coz i don't think our cat would like them...or maybe she would like them to much! I have some photos of them too but there not on my laptop yet so you will have to wait for these ones.

Goodbye Suzy XXX

I have some very sad news, my good friend Suzy passed away last night in her sleep.
I'm very upset and don't know what to say, Suzy was such a nice and lovely lady and I'm so angry with CF and that she didn't get the TX she needed.

I have felt so lost today and didn't know what to do with myself really, it came as such a shock as no one really knew how ill she was, Suzy never liked to talk about CF, she didn't want to be reminded of it i think, whenever i asked her if she was ok see always said she was.

I will miss her so much, so so much....staying in papworth will never be the same, i wont have Suzy there to chat to about the care and food we get.

Cant say anymore I'm sorry x

Told Off By Gemma.

I have added some photos of me getting my hair cut and having to wear a black bin bag as Rosie forgot her coat thing for me and one of Connor looking very cute!

Ok so i have been told off by Gemma!!!!

Not doing my Tobi neb once a day now and so going to try really hard to do it 2 times a day like Gemma say's....easier said then done, but i will really try.

Since taking the Tobi yesterday i have had a right tickle of a cough that as really started to pi** me off lol hope it don't last.

I went to bed at like 8.45pm yesterday, i was just so tired, I'm alot better today and in a clean mode so after i take my Tobi in a min i will start with the washing up and ironing and that. already done the hovering today but only coz Connor ran in to my plant pot and mud went all over the carpet.

I have been saving up for the last 3 weeks!! i opened a online saver and every time any money goes in i put 10 pound in the online saver, i have 50 pound now and Matt as been doing the same and he has 50! we are saving to do up the back garden, we have an old coal shed by our back door, its really ugly and coz its so big we don't get much light in the back of the house and its full of spider so we are just getting permission from the council to pull it down and patio a bit of the back garden so we can set up our BBQ and get some nice chairs and table for the summer! and i want a new washing line lol and were going to put up a new wooden shed at the end of the garden so we have somewhere to keep bits and bobs. anyway i would say we need around 500 pound to do that and we have 100 together so far and that's only in 3 weeks so i don't think it will take us long to do it.

right my washing is done in the tumble dryer so going to sort that then take my Tobi.

x

Day One Of Tobi Plan

Ok i have just done the 1st lot of my Tobi so will carry on to moz!

x

Tobi Nebs.

I know i don't do my Tobi Nebs alot....ok never but i have got a plan!
I'm going to start taking it once a day and see how i go, if i keep that up i will up it to 2 times a day. I don't do my DNAEs unless i know i have time and will do my physio, if i do them and then don't do my physio then its bad as it can make stuff worse in my lungs and i don't want that.

I have a cough again but to tell you the truth i always do so that's nothing new! i do also feel breathless when i walk, even if its just around tesco, so the nebs will help.

I have been doing lots of e-baying this last month and with my mum and dad giving us stuff to sell i think we have made 400-500 pound! all has gone on bills tho so didn't see any of it, well i did see 46.99 of it as i got a new watch :) its a DKNY one and i had the same one 2 years ago for x-mas but i cant find it anywhere! anyway i treated my self to it.
I also got a new Radley purse for mothers day at the weekend too, really happy with that, i love it. thank you Connor xx (and Matt lol)

My friend Charlotte is in hospital at the mo so i went up to see her last night and took her in a goody bag full of bits! she loved it so that was the main thing, and i also got her a card...now this may sound like something she would get anyway but your wrong! as many CF people will tell you because we are in and out of hospital all the time people forget we are ill and just see it as every day life and nothing diff, she was very happy with the card too :)

xxx

Council, Shopping and Nasty Buttons!

The last few days has been all about the council.
I filled out a form about council tax as i have a med's room where my physio bed and bike are and all my feeds stuff and stock or all my i.v's and my normal pills for every day.
Well the lady i talked to when i asked for the form told me that even tho we have this room for all my stuff and don't sleep in it or anything she said i wouldn't get the discount as i have not changed it just put stuff in it.
Anyway a man rang me from the council yesterday and asked what CF was and what i use the room for so once i had told him all about it he said it sounds like i will get the discount but he would need to make a 5 min vist to make sure I'm telling the truth but said he didn't see a reason why not, silly woman didn't know what she was talking about! so he is due at 3pm to moz.

I had a lady ring me on Monday i think it was anyway it turns out we can have our loft insulated for free because I'm on DLA so I'm happy about that all i have to do is get the council to agree to it and it will be done.
I rang the council and they said i have to send them a letter saying what i want to do and they will send one back telling me if we can do it or not so while i was doing that i also asked if we could knock down the old brick coal shed by our back door as i cant see Connor in the garden unless I'm out there with him, so its for safety really + i really hate it, its about a foot from our back door and its full of bugs and not very nice stuff lol so I'm going to drop that in to moz after i have taken Connor to tumble tot's.

I went shopping to lakeside with my friend Laura yesterday, it was a really nice day out! i got Matt his birthday stuff, wont tell you what as me may read this! I also got a few things to make a cake with too :D if i don't mess it up that is lol if i do i will just buy a white iced cake and put everything on that, i will also take photo's.

Think i have got my button sorted out now, it was bleeding last night as when i woke up i had crusty dry bloody round it, it kills. i have started my cipro yesterday so hope they work even tho my CF nurse said they couldn't say if they would or not! grrr.
I'm going to deff have it out still as i hate it and don't use it so i want it out!
I have to pick up some dressing for it to moz and see if that will also help it, she said that i should not be worried if it turns my belly black....right lol