Shopping and overnight feeds

Today was a really good day, i had such a nice time.
Me and Matt went shopping and got Connor a Disney towel for his birthday, also we got Keeley the Lady dog teddy out of the Lady and the Tramp film so i hope she will like that and i also got a new bag from River Island so I'm happy lol.

I have set my feed to 800ml now so I'll see if that is ok, when i started the feeds in Dec last year (2007) doing 1000ml all at once was making me sick right after (not nice and a waste of time doing the feed) so i went down to just 500ml and i have worked my way back up, i was on 775ml but have set it to 800ml tonight so we will say.
I also don't like doing my feed overnight as it wakes me up when i have to turn it off and i don't like it as some times it leaks and that's not nice at all so i have my dinner around 6pm and then start my feed at around 7-8pm and its done in about 3 hours.

I have not seen Connor today so I'm a bit upset about that :( i will see him tomorrow and then on Monday i will see him everyday!!!! until i get dragged back in here that is.
We have now put him on cow's milk (blue top) as he was coming up to his 1st birthday and at one they can change from baby's milk to cow's, he is doing very well on it and its so much easier not having to make his bottle's up Matt says (changed him over while i was in hospital) and we are trying him on more "our" foods and all is going well, he had a chip the other day from Mc Donald's....prob not the best food for him but it was only one chip and he seemed to like mushing it up more then he did like eating it.

The talk...

I had the talk with Dr Floto today about Transplants, it was ok and not as bad as i was thinking. He is putting me on more pills and inhalers and is going to get me a bone scan done and i have to go to the liver clinic again as my liver scan shows it is a bit worse then last year and all in all were going to see how things go over the next few months and then talk about it again i guess.
I don't want a Transplant but it don't bare thinking about what will happen if i don't....
Anyway there is no point in worrying about this at the minute.

I got rudely woken at 5.40am today by a thick nurse who was doing the night shift, anyway she woke me up to ask if i would do a BM........at 5.40am in the morning??? It took all my strength not to ram the BM machine down her throat.
She then asked me if i was refusing, so that made me even more mad.

I get to go home on Monday and i cant wait, its going to be so nice to sleep in my own bed again and to eat a good cooked meal again and i have missed Matt and Connor so much, the cat i have not missed so much lol

Me and my mates Dee and Laura are meeting up on Tuesday and going up the town shopping, i have missed shopping as i get very tired but with me coming out of hospital the day before I'm guessing i will be well enough for a few hours walking about, Connor is coming and also Dee's little girl Keeley so that will be nice.
It is also Laura's birthday on Tuesday too so it will be nice to have lunch out and i can give her her birthday gift today, its a pink box with number 7 make up in it, it is really nice so i hope she likes it.

Next week is so busy as its Connor's birthday next Saturday and we have so much to do for it, me and my mum are getting Connor's hair cut on Thursday, i hope he is going to sit still so he don't end up with half an ear by the end of it...Matt would not be to happy with me.
On the Friday me and my mum are going shopping for a birthday cake for Connor, its going to be a plain white iced one and I'm going to then decorate it, i have already got him the candle to go on it, it is a blue number one with a elephant, its so cute.
I will take photo's and put them up once i have done it.

I'm going to go see the new Mamma Mia movies with Dee and Laura sometime next week, i cant wait as its meant to be really good, my nurse went last night and she said i have to see it as its so good and she had such a good time.

So that's my plans for next week and cant wait.

Papworth, Bumps and Birthdays

Well been back in Papworth (my CF hospital) for 6 days so far and I'm so bored, I'm an hour away from home so that means i don't get to see Connor much as he gets bored up here as there isn't anything for a baby to do really.
The main thing is that i am getting better and so hope i will stay out of here for more then 3 weeks, fingers crossed.
I came in on Monday at around 5pm after ringing them about 10am, i could not go in right away as they didn't have a bed for me till after the ward round had been done around 2pm.
When i came in i saw the on call Dr and had my port needle put in, then i was told that i was to have my bronchoscopy the next day and so could not start my i.v's that day. -

A bronchoscopy is a procedure that allows us to look at the airways, or the tracheobronchial tree, through a special sort of “scope”, called a bronchoscope. With the bronchoscope, we can evaluate the respiratory system, including the voice box (larynx), the wind pipe (trachea), and the airways (bronchi) for evidence of any abnormality or infection.

- Got that off a web site i found on the Internet as i didn't have a clue as to what to put as i was asleep.

I had the bronchoscopy done and it was fine, don't remember any of it thank god! altho i was in a bit of pain with my right side as the Dr had got a lot of sputum off that side, they gave me pain killers and i was fine if not groggy for a day or so after.

With me being in here Matt has to look after Connor all on his own and he is doing a good job altho Connor has had to bumps in 6 days.....
1st one he fell off our bed and hit his head on the bedside table as he fell, Matt said Connor cried his little heart out bless him and he now has a red mark on his head by his eyebrow!
2nd Connor was playing on the floor with his toys and Matt had put the baby walker down and lent it on the wall, Connor crawled over and pushed it and it fell on him...more crying but he was ok.
I have now given Matt orders to not let anything else happen to Connor or i will be coming home early to keep an eye on him.

Connor will be one years old in 14 days!!!!! i cant wait, i will be out of hospital and feel well and can really enjoy the day, i cant wait to see Connor open his gifts from everyone and have everyone round our house for the 1st time since we moved in back in feb.
I was going to bake Connor a birthday cake from scrach but with having to be admited to hospital i now think i wont have very much time and as i have never baked a cake before i don't want to mess it up and not have enough time to do another one so i am now going to get a plain white iced cake from tesco and decorate it myself altho I'm not sure how i will do this yet, i know i will be putting one candle on and it will be blue but that's as far as i have got so i will have to have a look online at others to see what to do.

(I know the spelling is bad lol)

Connor an his toy box

Connor pulling himself up to his knees to look in his toy box and pull toys out. it wont be long untill he will be walking im sure.

Baby on the go....

Now i ask you is it a good thing or bad thing that Connor has started to crawl?? well for the 1st 10 Min's it was fab and seeing him crawling all around the living room was gr8...that was until he found the TV set! now he wont leave it alone, he keep running up to it and playing with all the setting on it making Matt very mad lol we keep saying no and picking him up and putting him back on the floor away from the TV and he looks at us smiles and laughs and then sets off again to it lol he's so cheeky! we don't laugh about it when he is around as we don't want him to think it is a game but its just so sweet.
Connor started to crawl on Friday and so it will be one week to moz and he is already pulling him self up on to his keens by his toy box and pulling toy's out. He is growing up so fast.

Connor will be ONE soon!!!!!!!! 26th July is his 1st birthday and we cant wait, we are having a little party for him with all our family and a few mates so that will be gr8 and its going to be a BBQ. My mum and nan and my grandad's girlfriend Cathy will be doing the food so i don't stress out and end up getting tired and make myself ill over it so that's gr8 and Matt and his dad (i think) will be doing the manly job of cooking the meat on the BBQ......i will let you know how we get on lol

Matt has a new tattoo on his left arm and down his chest so that's cool, he has to go back next week to have it filled in as he only had the out line done as it was so big it would have taken 3 hour's in all to do it as just the out line took an hour or so.