Well matt came home from work last night and said that his days at work had been cut from 5 a week to 3 a week.
Its a bit of a worry to say the least, we just about get buy with what were on at the mo so taking a loss of £500 a month is really going to mess us up.
We have bills and credit cards and stuff to pay for and we already don't go out much and never for meals and only get a take a way once a month or so.
They have to wait till September at least before they find out if they go back to 5 days a week.
The council wont help with the rent as when Matt 1st went back to do last year he did 3 days a week and so was the same money and they wouldn't help then so I'm not holding my breath that they will help us out now but we will ring them to find out for sure, i might do that today, give them a bell I'm sure they will send out some paper work or something like that.
Connor has been in his single bed now for a week and he is doing so well, he cried the 1st 2 nights but after that he got right in bed and falls asleep on his own, I'm so proud of him.
He is growing up so fast!
Friday, 3 July 2009
Thursday, 2 July 2009
Books, i.v's and everything else!
Connor's bedroom is all done now, only took a month! i have already started to rip the wallpaper off mine and Matt's bedroom but he says he is having a weekend off this week and will sand and paint next weekend so i have a week left to rip the rest of the wallpaper off at least.
I'm on i.v's at the moment, i come off them on Monday so not long at all. this last month has just flown by so fast that i don't know where i am lol
My LF was 37% when i started my i.v's and on Monday it was at 44% so that is great news at only a week in, hope it is up at 46% by Monday coming! my wight was 54.2kg when i started and on Monday it was at 56kg!!! i think that is wrong. they had moved them for a start as they were painting the LF room so i wonder if that has anything to do with it at all and I'm not sure its the normal one that i use so that too could make a diff and because when i got home and weighed myself mine said 55kg. we will see what they say on Monday coming.
Its Connors birthday in 3 weeks and 3 days!!!!! wow i cant get over the fact that my little baby is 2! he will be at school before i know it.
His new thing at the moment is Toy Story so we have got him a Buzz Light-Year for his birthday along with tons of other stuff....i may have gone a bit over the top but he is only 2 once right :D
I have been reading at lot this last month, read all 4 books from the Twilight saga and The Host book (Humans become hosts for these invaders, their minds taken over while their bodies remain intact and continue their lives apparently unchanged) and a book called Mummy Said The F Word! all very good books, i have ordered 2 more books from Amazon and they should be here in the new few days.
The old coal shed in our garden is getting pulled down on Monday so i cant wait for that to get started! i will take photos and put the up, along with some of Connors new room and ours and some of Connor himself! :D
Anyway i must get off as this hot weather is to hot to just sit about in. i need to find my fan....
* I have put some labels on this post...not sure i have done it right but we will see *
Friday, 12 June 2009
New Moon
I got a new book yesterday after hearing how good it was from Jo and Gemma.
It's called New Moon and its the 2nd book of 4 from the Twilight saga, its really good so far. I saw the film Twilight so didn't get that book to read (altho gemma said i should of lol)
i bet i read it within a week or 2!
Connor's room is nearly done now just got to paint it so we will be doing that at the weekend, i cant wait till its all done and is a big boy's room :)
Life has been a bit busy the last week or so. My scare has just about healed from having my button taken out, that was a long 2 months lol
I have done my back in too, i woke up the other morning and was fine but then i had a coughing fit and my back just clicked and that was it! Matt had to have a day off work to help look after Connor as i couldn't bend or much of anything else.
I have got Matt's stuff for fathers day all ready and wrapped and Connor left his mark on the card lol i got Matt a t-shirt from gap and some joop as his other bottle ran out, with the joop he got a free lap-top case so that's cool, I'm sure he will like it, just have to get a lap-top for himself lol
I have asked for a ipod nano for x-mas or my birthday and a long pair of ugg's (i got a short pair last year) and some skinny jeans....i know its not for ages yet but he can start and save now haha
I have been doing the wii fit for the last week and on the weight bit i have put on 2 lb!!! grrr i don't want to put any more weight on as its all going to my belly, and also my wii fit age was 23 2 months ago and now its 27!!! come on lol
It really makes me cough though so that's really good and i feel its helping with my LF (well it better be!)
It's called New Moon and its the 2nd book of 4 from the Twilight saga, its really good so far. I saw the film Twilight so didn't get that book to read (altho gemma said i should of lol)
i bet i read it within a week or 2!
Connor's room is nearly done now just got to paint it so we will be doing that at the weekend, i cant wait till its all done and is a big boy's room :)
Life has been a bit busy the last week or so. My scare has just about healed from having my button taken out, that was a long 2 months lol
I have done my back in too, i woke up the other morning and was fine but then i had a coughing fit and my back just clicked and that was it! Matt had to have a day off work to help look after Connor as i couldn't bend or much of anything else.
I have got Matt's stuff for fathers day all ready and wrapped and Connor left his mark on the card lol i got Matt a t-shirt from gap and some joop as his other bottle ran out, with the joop he got a free lap-top case so that's cool, I'm sure he will like it, just have to get a lap-top for himself lol
I have asked for a ipod nano for x-mas or my birthday and a long pair of ugg's (i got a short pair last year) and some skinny jeans....i know its not for ages yet but he can start and save now haha
I have been doing the wii fit for the last week and on the weight bit i have put on 2 lb!!! grrr i don't want to put any more weight on as its all going to my belly, and also my wii fit age was 23 2 months ago and now its 27!!! come on lol
It really makes me cough though so that's really good and i feel its helping with my LF (well it better be!)
Monday, 8 June 2009
Non Stop!
Once again I'm very late in blogging!
I really don't know where the time goes, I'm always busy, that or I'm resting and cant be bothered to blog.
Right well Lot's have happened this last month, some good and some bad.
Connor's big boy bed came and now were just waiting for the mattress to come, he has a bed side table coming too but that is taking 11 weeks to come! joke!
I have picked what paint i want in his room, a willow tree (light/mint green) for one wall and a cream for the others and i got some of them tester pots in it so they look good.
I want to get him room done now, its been like 2 weekends now doing it, we have got all the wall paper off now and have filled in all the cracks (there was lots!) and then next weekend Matt will be sanding it all down (I'm not doing it coz of my CF) and then we can start and paint! and then once all that is done my mate Laura is coming down and she is going to put all Connors big Dino wall stickers up as I'm so rubbish at stuff like that but she makes everything look nice, her son's room looks like its out of one of them kids Mag's! she is very good at that stuff.
So we have been doing that these past few weekends.
Other things that have been going on is Charlie from papworth getting her lung transplant after only 2 days on the waiting list! i mean come on how good is that. she is doing well from what i hear, i talked to her the other day on MSN and she was good, couldn't get over how fast it as all happened tho :)
Sad news is that Ed from papworth has passed away :( he was one of the oldies (in his 30's) and every one loved him, he always made people laugh and was great......very great and I'm very sad he isn't here now. he was one of the 1st people to talk to me when i moved up to papworth.
And what makes it so much harder is that he got his call last June and got new lungs.
R.I.P Ed xx
I really don't know where the time goes, I'm always busy, that or I'm resting and cant be bothered to blog.
Right well Lot's have happened this last month, some good and some bad.
Connor's big boy bed came and now were just waiting for the mattress to come, he has a bed side table coming too but that is taking 11 weeks to come! joke!
I have picked what paint i want in his room, a willow tree (light/mint green) for one wall and a cream for the others and i got some of them tester pots in it so they look good.
I want to get him room done now, its been like 2 weekends now doing it, we have got all the wall paper off now and have filled in all the cracks (there was lots!) and then next weekend Matt will be sanding it all down (I'm not doing it coz of my CF) and then we can start and paint! and then once all that is done my mate Laura is coming down and she is going to put all Connors big Dino wall stickers up as I'm so rubbish at stuff like that but she makes everything look nice, her son's room looks like its out of one of them kids Mag's! she is very good at that stuff.
So we have been doing that these past few weekends.
Other things that have been going on is Charlie from papworth getting her lung transplant after only 2 days on the waiting list! i mean come on how good is that. she is doing well from what i hear, i talked to her the other day on MSN and she was good, couldn't get over how fast it as all happened tho :)
Sad news is that Ed from papworth has passed away :( he was one of the oldies (in his 30's) and every one loved him, he always made people laugh and was great......very great and I'm very sad he isn't here now. he was one of the 1st people to talk to me when i moved up to papworth.
And what makes it so much harder is that he got his call last June and got new lungs.
R.I.P Ed xx
Tuesday, 12 May 2009
Late Up-date
Well this is a very late up-date, I'm not even sure what i have been doing with my time to tell you the truth!
The sun has been out alot over the last few weeks so that's been nice, been out enjoying it with Connor, we have been to a farm and the park and to my friends house.
I have also been to the pic's to see that film ghost's of girlfriends past...it really wasn't that good tho, I'm not very happy about it but at least it didn't cost me anything as i had my free cinema card! i also had a hot dog while i was there and it was so nice but i forgot to get some sweets or popcorn so was pretty bored with nothing to eat while i was there lol
I have been getting bits and Bob's for Connor's bedroom, so far i have some dinosaur wall stickers that cost me £35 but there really nice and got his name in stickers too from the same website, i have got him some dinosaur bedding from Next and a dinosaur teddy from Next that looked good on the bed in the shop lol that was £42, i got him a dinosaur height chart too lol can you what Im going for here?. my mum got him a side rail for his single bed when we buy it so he wont fall out of it so that's great, i wanna get him a few more bits too like a lamp and re-paint his room.
Were getting his bed from Next and Matt's mum and dad are going to pay for half of his bed and mattress for his 2nd birthday so that's a big help as the bed without a mattress is £225! I'm spending so much money on his room but i want stuff that will last him and the bed should do him till he is at least 10 years old then he will prob get a double bed as he has a big bedroom. I'm also going to order him the bed side cabinet too from Next at the same time.
its unreal that Connor will be 2 in 2 months! it has gone so fast.
he is talking more now so I'm really happy about that, he can now....
* say bye and wave at the same time,
*say bob (over and over!)
*say go
*say mum
*say wow
*say oh no.
prob dont seem that much but to me it is lol in a few months he will be talking and we wont be able to shut him up i bet haha
The sun has been out alot over the last few weeks so that's been nice, been out enjoying it with Connor, we have been to a farm and the park and to my friends house.
I have also been to the pic's to see that film ghost's of girlfriends past...it really wasn't that good tho, I'm not very happy about it but at least it didn't cost me anything as i had my free cinema card! i also had a hot dog while i was there and it was so nice but i forgot to get some sweets or popcorn so was pretty bored with nothing to eat while i was there lol
I have been getting bits and Bob's for Connor's bedroom, so far i have some dinosaur wall stickers that cost me £35 but there really nice and got his name in stickers too from the same website, i have got him some dinosaur bedding from Next and a dinosaur teddy from Next that looked good on the bed in the shop lol that was £42, i got him a dinosaur height chart too lol can you what Im going for here?. my mum got him a side rail for his single bed when we buy it so he wont fall out of it so that's great, i wanna get him a few more bits too like a lamp and re-paint his room.
Were getting his bed from Next and Matt's mum and dad are going to pay for half of his bed and mattress for his 2nd birthday so that's a big help as the bed without a mattress is £225! I'm spending so much money on his room but i want stuff that will last him and the bed should do him till he is at least 10 years old then he will prob get a double bed as he has a big bedroom. I'm also going to order him the bed side cabinet too from Next at the same time.
its unreal that Connor will be 2 in 2 months! it has gone so fast.
he is talking more now so I'm really happy about that, he can now....
* say bye and wave at the same time,
*say bob (over and over!)
*say go
*say mum
*say wow
*say oh no.
prob dont seem that much but to me it is lol in a few months he will be talking and we wont be able to shut him up i bet haha
Tuesday, 21 April 2009
My E-Flow Is No More...
My E-Flow has passed its sell by date as they say, it just died, stopped working! I cant get it to turn back on or anything and i have tryed everything i can think of.
Anyway i rang my team and have been told to bring it up A.S.A.P but i cant get up for 2 days so that is just going to have to do. I'm so mad coz i have been so good with doing my neb's and at the moment I'm on my month of colomycin so that's going to be a messed up month, i just hope that i can get back in to it once i get it fixed or get a new one.
I'm loving the sun we have been having and its great that all my washing can go out there so i don't have to use my tumble dryer altho i do have to iron it now but that don't take long.
I'm still waiting to hear back from the council to see when we can pull the old coal shed down that like a meter from my back door! not pretty at all.
Connor has 4 ex battery hen's now, there at my mums house coz i don't think our cat would like them...or maybe she would like them to much! I have some photos of them too but there not on my laptop yet so you will have to wait for these ones.
Anyway i rang my team and have been told to bring it up A.S.A.P but i cant get up for 2 days so that is just going to have to do. I'm so mad coz i have been so good with doing my neb's and at the moment I'm on my month of colomycin so that's going to be a messed up month, i just hope that i can get back in to it once i get it fixed or get a new one.
I'm loving the sun we have been having and its great that all my washing can go out there so i don't have to use my tumble dryer altho i do have to iron it now but that don't take long.
I'm still waiting to hear back from the council to see when we can pull the old coal shed down that like a meter from my back door! not pretty at all.
Connor has 4 ex battery hen's now, there at my mums house coz i don't think our cat would like them...or maybe she would like them to much! I have some photos of them too but there not on my laptop yet so you will have to wait for these ones.
Tuesday, 7 April 2009
Goodbye Suzy XXX
I have some very sad news, my good friend Suzy passed away last night in her sleep.
I'm very upset and don't know what to say, Suzy was such a nice and lovely lady and I'm so angry with CF and that she didn't get the TX she needed.
I have felt so lost today and didn't know what to do with myself really, it came as such a shock as no one really knew how ill she was, Suzy never liked to talk about CF, she didn't want to be reminded of it i think, whenever i asked her if she was ok see always said she was.
I will miss her so much, so so much....staying in papworth will never be the same, i wont have Suzy there to chat to about the care and food we get.
Cant say anymore I'm sorry x
I'm very upset and don't know what to say, Suzy was such a nice and lovely lady and I'm so angry with CF and that she didn't get the TX she needed.
I have felt so lost today and didn't know what to do with myself really, it came as such a shock as no one really knew how ill she was, Suzy never liked to talk about CF, she didn't want to be reminded of it i think, whenever i asked her if she was ok see always said she was.
I will miss her so much, so so much....staying in papworth will never be the same, i wont have Suzy there to chat to about the care and food we get.
Cant say anymore I'm sorry x
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