I'm feeling a bit off today so thought it was best to ring the hospital and start some iv's as i know i have to make sure my CRP is down now ready for TX so its best to be on the side of caution really.
I don't think they will keep me, they need the beds and i don't want or need to stay in but to be on the safe size i will be taking a bag with me just in case.
Today has been so stressful with Connor and Matt, Matt's stressed i think because he is worrying about me and he is trying to do all the house work and look after me and Connor and Connor is at that age where he is pushing the line to see how far he can go. All that makes for a stressful house to be in.
I wish i get the call soon so i can start being a real mum to Connor again and Matt can go back to work, life is just at a stand still and its not nice, its not living its just surviving.
Showing posts with label Life. Show all posts
Showing posts with label Life. Show all posts
Tuesday, 19 April 2011
Sunday, 20 February 2011
Unsure
I'm very unsure about to moz app with the TX dr's...i don't know what to except or if they will do any test, i think the thing that is getting to me the most is that they could turn around and say no or that I'm too well.
Half of me thinks I'm to well but that half of me is the half that sits on the sofa all day bored, the only hard thing I'm doing is breathing and most of the time i don't think about it unless i get up and walk, but then if i do get up and say go to the toilet or fill the dishwasher or even make Connor something to eat i feel it, i feel so tired or breathless and just not well.
New lungs is the light at the end of the tunnel because i would hate it if this is all my life is, not living just surviving from day to day.
I cant work, i cant play with Connor, i cant take the dog out for a walk, i haven't been shopping since before Xmas and even that was with me in a chair with some one pushing me.
day to day life is getting hard.
Half of me thinks I'm to well but that half of me is the half that sits on the sofa all day bored, the only hard thing I'm doing is breathing and most of the time i don't think about it unless i get up and walk, but then if i do get up and say go to the toilet or fill the dishwasher or even make Connor something to eat i feel it, i feel so tired or breathless and just not well.
New lungs is the light at the end of the tunnel because i would hate it if this is all my life is, not living just surviving from day to day.
I cant work, i cant play with Connor, i cant take the dog out for a walk, i haven't been shopping since before Xmas and even that was with me in a chair with some one pushing me.
day to day life is getting hard.
Wednesday, 19 May 2010
Mad Month!
Time fly's when your having fun....isn't that the saying? I'm not sure i have been having fun but time has been flying this last month, what with the wedding plans and being on i.v's for 3 weeks (end Friday) i just never seem to have a spare min to myself.
In 9 days i will be a married lady! that is scary, very scary but also its the start of something new, being a grown up in a way...but you would think having Connor would have made me grow up, don't get me wrong it did, alot. but this isn't the same i think the main thing that makes it more grown up is that i will be changing my name, it kind of feels like i wont be me anymore....I'm not sure that even makes sence but i think the scary bit is changing my name.
We want to get a morgae in the nest few years too so we have to start saving for a deposit now so we will have a good one and then when we have lived here for 5 years we can buy the place off the council so I'm looking forward to that.
everything is looking like things are starting to go our way for once!
In other news!!!!!!!!!!!!!!!
My close friend Victoria got the call on Saturday night and got the gift of new lungs on Sunday morning!!!!! i got a text at around 5am from my friend Gemma telling me about it and i was so happy i screamed lol Matt tho there was something wrong! (i didn't get the text till around 8am when i woke up) I'm so proud of her, i was so worried while she was having the and even more so when she was still asleep before they woke her up! she is doing so well and like i say I'm just so happy for her, i talk to my mum about alot of my CF friends ( vic, gem and kay mainly) and she was so happy to hear about Victoria too!
Connor now is at pre-school Monday afternoons and Wednesday all day! he is growning up so fast! after the wedding is over with i need to start and sort out his 3rd birthday, plan and invite people and book a place or sort out a BBQ....still don't know what were going to do for him yet.
He hasn't been to well today, had a temp most of the day but the only good thing is that the wedding isn't till next week so he has a week to get better.
He looks sooooo sweet in his little pageboy suit!!!! i cant wait to see him next to Matt when they are both dressed up, going to look so cute!
I'm getting a spray tan done next week for the wedding! never had one before so fingers crossed i will look ok, if i don't then I'm screwed haha. *photos to come*
*To much on my mind to think how to spell sorry lol*
In 9 days i will be a married lady! that is scary, very scary but also its the start of something new, being a grown up in a way...but you would think having Connor would have made me grow up, don't get me wrong it did, alot. but this isn't the same i think the main thing that makes it more grown up is that i will be changing my name, it kind of feels like i wont be me anymore....I'm not sure that even makes sence but i think the scary bit is changing my name.
We want to get a morgae in the nest few years too so we have to start saving for a deposit now so we will have a good one and then when we have lived here for 5 years we can buy the place off the council so I'm looking forward to that.
everything is looking like things are starting to go our way for once!
In other news!!!!!!!!!!!!!!!
My close friend Victoria got the call on Saturday night and got the gift of new lungs on Sunday morning!!!!! i got a text at around 5am from my friend Gemma telling me about it and i was so happy i screamed lol Matt tho there was something wrong! (i didn't get the text till around 8am when i woke up) I'm so proud of her, i was so worried while she was having the and even more so when she was still asleep before they woke her up! she is doing so well and like i say I'm just so happy for her, i talk to my mum about alot of my CF friends ( vic, gem and kay mainly) and she was so happy to hear about Victoria too!
Connor now is at pre-school Monday afternoons and Wednesday all day! he is growning up so fast! after the wedding is over with i need to start and sort out his 3rd birthday, plan and invite people and book a place or sort out a BBQ....still don't know what were going to do for him yet.
He hasn't been to well today, had a temp most of the day but the only good thing is that the wedding isn't till next week so he has a week to get better.
He looks sooooo sweet in his little pageboy suit!!!! i cant wait to see him next to Matt when they are both dressed up, going to look so cute!
I'm getting a spray tan done next week for the wedding! never had one before so fingers crossed i will look ok, if i don't then I'm screwed haha. *photos to come*
*To much on my mind to think how to spell sorry lol*
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