Compliance With Treatments

Gemma got me thinking about my CF today and how compliant i am with it.
The fact of the matter is that i have let it slip big time, i can sit here and say "oh but i cant fit it all in because i have Connor to look after" but its not that at all really, i should be doing it because it is my life and if i want to be here to see Connor grow up then I'm just going to have to suck it up and start doing them more.

What i do at the moment is insulin and night time times manly oh and Creon but i never miss Creon. i am missing out on my TOBI Neb's (do them once in a blue moon) and my DNAEs Neb's, morning pills and phyiso 2x a day.
and I'm hit and miss with my inhaler.

I'm so angry with my self and i cant keep going like this as i wont get on the TX list when i need to because you have to be fully compliant or they don't do the TX.

I have got a book and have done a page with all my meds in and then i can tick them or put a cross if i miss them.
I'm really going to try, i have done it before so i know i can if i put my mind to it.

Other news I'm waiting for a bed at papworth because I'm so tired and out of breath, i need a good rest and looking after.
I'm looking forward to some ME time too but will miss Connor more then words can say but its this or stay ill and just sit there and not playing with him or anything.
I don't want to be that kind of mum.

I'm going to join the gym soon too, well i think it will be opening up soon as it looks done. i cant wait, i hear its very good for your lungs and so is swimming so that will be what I'm doing over the next few months.

Connor is going to a new play school once I'm out of hospital as I'm fed up with the one that he is at now, there cr*p and its not good enough for him, were sending him to one that nearly twice the amount of money but its so much better for him and my dad and Matt's dad will be paying for it anyway so we don't have to worry about that at all and when he is 3 he will get it for free so its not for long.

Right I'm going and have a rest, I'll post next once I'm in hospital.

p.s happy new year everyone x

Dont Worry Im Still Here!!

Well i don't know what to say...i have really let things slide with this blog! i guess nothing has been going on that i think people would want to know lol


I have been in hospital and back on I.V's as my LF was back down and after a week was down even more! so i have 3 days left then I'm off them so I'm looking forward to see what they are after 2 weeks of i.v's.


My weight is down too, i have lost around 7kg in 3 months so isn't good, it went down to 49.2kg when i started I.V's but after 7 days it was at 50.1kg so that's good, i think that is coz i have been eating more now and also maybe coz i have been but on insulin 4 times a day :( but if it helps i'll do it. altho i might add i have missed a few with forgetting or being out and forgot to put the pen in my bag, saying that i have miss 2 lots of I.V's this time for being out and forgetting to take them with me so maybe my LF wont be back up!



X-mas is just about here! I love it around this time of year as everyone is in a good mood and i love buying people gifts :D so far i have most of what i have to get.


I need to buy Connor's main present still and few bits here and there for people as i have got everyone either one main present or 2 little ones to make the same money up as everyone else.


I cant wait to put my tree up, only another month left :D We always put our tree up on my birthday, 11th Dec and i still do this even tho i don't live at home now.


For my birthday we are (me, Matt, Connor and Matt's mum) are going to that new shopping center in London, i cant wait I'm going to get some long black UGG boots and some skinny jeans.


The day after we have to go out for Matt's nan and grandad's 50th annavery (SP) meal thing so that will be nice, i have seen a lovely dress in Jane Norman that i want to get but cant try it on yet as my port has the needle in for my I.V's so have to wait till next week. If i got it i would need some nice shoes to go with it too...i don't have any lol i live in trainers and don't really go out out to post places to it will be nice to get something nice for a change. This is the dress anyway....

Connor has started going to play-school for around a month or 2 now and loves it :) he goes two morning as week for 3 hours so i get some rest and get to clean up without him messing it up after me! the joys of a child, he is coming along with his words and can say around 30+ so he is getting better and is starting to put 2 together like he was in the bath a few days ago and when the water was draining away he was saying "bye-bye bubbles" it was so sweet he was waving to them and everything!

I'm going to see the new twilight movie when it comes out next week :D its called "new moon" I'm sure you all know what its about...if not read the book lol

I have to go sort Connor out now so this will have to be the end of this blog for now but i will re-start to update it alot more.