Tuesday, 27 May 2008


Here are some photo's of Connor and me :) just found out how to load them to my blog lol.

Sunday, 11 May 2008

Day 13 and Harry's Birthday

Day 13 of I.V's, and so far....
*Feel alot better
*Don't have much sputum
*Can walk more then a few feet without getting out of breath
*LF gone from 34% to 62%
*Looking so much better
*Not coughing half as much.

I finish my I.V's tomorrow (Monday) but i wont be going home as I'm having my feeding tube out and a mickey button put in so i will no longer have a 12 inch tube coming out my belly, I'm rather happy about that and cant wait.

I have had a lovely weekend at home, the sun has been out and it's been so hot i have a tan! we have had family BBQ's and we got Connor a paddling pool, he loved it. We put a hat on him and factor 50 sun cream because the sun was so hot, it was around 25c now that's very hot for the 11th may.

It's my little brothers 20th birthday today so....HAPPY BIRTHDAY HARRY....must be nice to have your birthday on a lovely hot day, mine is in middle of December so i don't get much of a tan on mine, well not unless i go on a sunbed or get a fake tan lol

Saturday, 3 May 2008

Princess Sam

I had some very sad news last night about Princess Sam off of the CF Trust Forum, Sadly she could no longer fight the fight and passed away on the evening of 2nd May 2008. Sam had been on the transplant list but like so many others she could not hold out for that call any longer.

Breathe easy now Princess Sam xx

Thursday, 1 May 2008

Day 4

I'm on day 4 of I.V's now and getting bit bored sat in hospital but i was very happy yesterday as i had some flowers delivered! lovely tulips of all different colours so that really made my day and put a big smile on my little face.

I will upload some photo's as soon as i get home after my stay in papworth, i will be going home on Saturday night till Sunday afternoon but i wont upload photo's then as i will be spending that time with Matt and Connor and not on the lap-top as you will have guessed with only a day at home.

Right so as for my stay in I'm having 2 weeks of I.V's (only 10 days left!) and they will end on the 12th May and on the 13th May I'm having my feeding tube taken out and a mikey button but it so that's good. I wont have to worry about Connor pulling the tube and it mean's me and Matt can have a really good hug again (4 months without a good hug was really starting to get me down) I'm really really happy now.